Monday, November 1, 2010

Day Five and Six - Home

We left the hospital at about 1 p.m. yesterday after a bath, removing all the leads, except for his oxygen, and taking out the last IV (which Quinn actually pulled off his foot on his own). We got set up with the home health people on the oxygen equipment, which he will probably have for a couple more weeks. He loved seeing sister and his favorite toys. We said goodbye to Grandpa Barnum and appreciate him staying with Lauren the whole week!

We have 50 ft of hose, so we had them put the machine in a central location so we could move from the living room to the bedroom to our bedroom. He is off Loritab and just being medicated with Motrin and Tylenol, so he's a little fussy and having a hard time sleeping. We know this will get better soon, but are in for a few sleepless nights until then.

Waiting to leave at the hospital:


His chest x-ray: You can see the wires in his ribs where they closed them shut. The circular mass behind the ribs is all heart since it was enlarged due to the VSD (a common side-effect). This will evenually go down to a normal size.


Looking at Lauren when we got home and holding a favorite toy:


The beast in our hallway:


Set up in the pack n' play in the living room, so we brought the "floor" and his playmat to an elevated surface:

Videos Day 5:



4 comments:

Allison said...

He is a trooper! Sounds like he's doing well! Love his big smile when he saw Lauren.

Jill and Greg said...

What a darling boy! He sure has great parents! We love you and continue to pray for you all.

Mom

Unknown said...

He looks like he is doing so well! How are you holding up? What we really need is some pictures of you and Jay so we can see how you really are doing. Hang in there. We're keeping you in our prayers.

Anonymous said...

I'm so so so glad he's doing well and home. You guys have been in my thoughts. He's such a cutie. Hope you are getting some rest.